Gather, a New Peer-Led Support Group for People Living with Mild Cognitive Impairment
People living with Mild Cognitive Impairment (MCI) continue to manage their daily lives independently, but they may notice changes in brain function compared to previous years. Each year, about 10-15% of individuals with MCI will go on to develop dementia, while others remain stable over time. Still, the experience of MCI can impact self-esteem and cause significant worry and uncertainty.
Gather is an innovative program designed specifically for people who have been diagnosed with MCI. This peer-led support group is based on a European model, where people living with MCI guide the discussion themselves, instead of a facilitator or expert guide. Together, the group can process emotions, share experiences, and find connection, encouragement and hope along the way. We asked Dementia Program Director Maribeth Gallagher about MCI and why the campus created this new support group.
Q: To start, what is the difference between MCI and mild dementia?
Mild cognitive impairment (MCI) is an early phase of decline in memory or other cognitive skills (like language, decision-making or visual/spatial awareness) in people who can still carry out most daily tasks independently. Whereas, in mild dementia, cognitive decline is more pronounced and begins to noticeably affect daily functioning and independence.
Q: What feelings can come up for someone living with MCI?
Living with MCI can bring up a wide and often complex mix of emotions, shaped by an individual’s level of self-awareness, coping style and the support around them. Some people may feel frustration, anger, confusion, sadness or embarrassment as they begin to struggle with tasks that once came easily. Anticipating what lies ahead may heighten anxiety, and feelings of self-consciousness in social situations can lead to withdrawal and loneliness.
Others may come to terms with their diagnosis and take a proactive approach — seeking out knowledge, tools and strategies to maintain their well-being. They do their best to face challenges without becoming overwhelmed by distressing emotions.
Everyone’s journey with MCI is different, but one thing is clear: coping mechanisms and supportive environments play a crucial role in how someone adjusts. That’s why support groups can be incredibly valuable — they offer connection, understanding and guidance that can make a meaningful difference.
Q: How can a support group help?
People can thrive with MCI when they connect with others who truly understand their experience. Having a safe space to openly discuss all parts of their journey and receive validation from peers can be incredibly beneficial. MCI support groups offer opportunities for learning, access to resources, encouragement, connection, strength and yes — even moments of humor shared with others facing similar challenges. These groups serve as a vital resource for people with MCI, reminding them they are not alone and inspiring hope and motivation to keep living their best life, despite the diagnosis.
Q: What is the advantage of a peer-led support group versus facilitator-led for people with MCI?
A peer-led support group gives voice and leadership to the truest MCI experts — those living with the diagnosis. People with MCI have a great deal to contribute. Peer-led support groups provide the space for sharing an abundance of wisdom and experience. In the spirit of “nothing about us, without us,” we are excited to offer people living with MCI an opportunity for their voices to be heard and to connect with others who truly understand.
Click here for more information on joining our MCI support group